Doctors - Lewy Body Dementia Resource Center (2022)

Generally, the majority of doctors who recognize and diagnose Lewy Body Dementia are neurologists–and specifically neurologists who specialize in dementia and movement disorders. There are geriatricians and geriatric psychiatrists who can identify the disease as well. The doctors listed below are all familiar with LBD.

Please note:

  • You may need a referral from a primary physician for some specialists.
  • In order to see a Geriatrician (vs. a neurologist), you generally need to be age 75 or over.
  • Some physicians may not have availability for a few months. We recommend you put your name on their wait list in case of a cancellation. WE ARE IN THE PROCESS OF SPEAKING WITH PHYSICIANS TO HELP ALLEVIATE LONG WAITS AND THE FRUSTRATION THAT GOES ALONG WITH THAT.

MANHATTAN

MOUNT SINAI HOSPITAL, 5 East 98th Street, 7th floor & Geriatric Care at Martha Stewart Center for Living, 1440 Madison Avenue

Eileen Callahan, MD, Geriatrician, 212-659-8552, 1440 Madison

Christine Chang, MD, Geriatrician, 212-659-8552, 1440 Madison

Audrey Chun, MD, Geriatrician, 212-659-8552, 1440 Madison

Julie Ciardullo, MD, Neurologist, 212-241-7076 – taking new patients

Samuel Gandy, MD, PhD, Neurologist, 212-241-7076, Samuel.gandy@mssm.edu

Florida Olivieri, MD, Geriatrician: 212-659-8552, 1440 Madison Avenue

Ravishankar Ramaswamy, MD, Geriatrician: 212-659-8552, 1440 Madison

MOUNT SINAI BETH ISRAEL HOSPITAL, 10 Union Square at 14th Street

Susan Bressman, MD, Neurologist, Chair of Neurology: 212-844-8379, susan.bressman@mssm.edu

Nathan Goldstein, MD, Geriatrician & Palliative Care Expert:212-844-1712

Vicki Lynn Shanker, MD, Neurologist: 212-844-6902

Matthew Swan, MD, Neurologist: 212-844-6925

MOUNT SINAI BETH ISRAEL SENIOR HEALTH

Joyce Fogel, MD, Geriatrician: 212-463-0101, 275 8th Avenue

Harry Ramos, MD, Geriatrician: 212-463-0101, 275 7th Avenue

NEW YORK-PRESBYTERIAN WEILL CORNELL, 1300 York Ave at 69th Street & Alzheimer’s Disease & Memory Disorders Program, 428 East 72nd Street

Naomi Feuer, MD, Neurologist: 240 East 59th Street: 888-922-2257

Michael Heublum, MD, Neurologist: 212-505-9800, 247 Third Avenue at 20th St

Richard Isaacson, MD, Neurologist: 212 746-0226

Michael Lin, MD, Neurologist: 212-746-2344

(Video) Lewy Body Dementia Basics & What to Know about Hospitalization in LBD

Sonal Mehta, MD, Geriatrician: 212-746-7000

Samuel Rapoport, Neurologist: 212-570-0642, 354 East 76th Street

COLUMBIA UNIVERSITY MEDICAL CENTER,710 West 168th Street

This Research Center of Excellence is located n the Taub Institute and Department of Neurology Division of Aging and Dementia. The Center includes 7 neurologists, 2 psychiatrists and 2 nurse practitioners, 2 social workers, and research staff. They offer comprehensive diagnostic evaluation and management. Evaluations may include cognitive testing, magnetic resonance imaging (MRI), nuclear medicine imaging (DaT, SPECT, and PET scans), and laboratory and biomarker studies. They also provide social support services, working closely with the Center of Excellence for Alzheimer’s Disease (CEAD). Participation in research studies is available, including observational studies, and clinical drug study trials.

Phone number:(212) 342-5615 – Ms. Betina Idnay, RN, nurse coordinator –Website:Taub Institute

Karen Bell, MD, Neurologist: 212-305-6939 – Verified –taking new patients

Lawrence Honig, MD, PhD, Neurologist: 212-305-6939

William Kreisl, MD, Neurologist: 212-305-6939

Oren Levy, MD, Neurologist: 212-305-1303

Karen Marder, MD, MPH, Neurologist: 212-305-6939

Cheryl Waters, MD, Neurologist: 212-305-1742

MOUNT SINAI ROOSEVELT, 111 West 114th Street

Joel Delfiner, MD, Neurologist, 212-523-6521, 425 west 59th Street

Alexander Schick, MD, Neurologist: 212-353-0505, 247 Third Avenue at 20th St

NYU LANGONE MEDICAL CENTER,240 East 38th Street, or 530 First Avenue, or 145 East 32nd Street

Dr. Caroline Blaum, MD, Geriatrician, 212- 263-8313

Alessandro Di Rocco, MD, Neurologist: 212-263-4838

Dr. John Dodson, MD, Geriatric Cardiologist

Steven Frucht, MD, Neurologist: 212-263-3210

Rebecca Gilbert, MD, PhD, Neurologist: 212-263-4838, 145 East 32nd St

Lindsey J. Gurin, MD, Neurologist: 212-263-3210

Arjun Masurkar, MD, PhD,Neurologist: 212-263-3210

Dr. Michael Perskin, MD, Geriatrician, 212-263-0433

(Video) What is Lewy body dementia and how is it treated?

Dr Adam Skolnick, MD, Geriatric Cardiologist,212 263 2674

Harold Weinberg, MD, PhD, Neurologist, 212-889-1931 or 212-213-9339

Thomas Wisniewski, MD, Neurologist, 212-263-7300, 400 East 34th St

[SEE BELOW FOR PODIATRISTS]

NASSAU COUNTY

NORTHWELL GERIATRIC MEDICAL GROUP – 410 Lakeville Road, New Hyde Park, NY – 516-708-2520 and geripal@orthwell.edu

Michele Bessler, MD, Ophthamologist, 516-334-9385, Post Rd, Westbury

Richard H. Blanck, MD, Neurologist, Northwell, Marcus Avenue, New Hyde Park, 516-466-4700

Ellen Braunstein, MD, Neurologist,Woodmere, 516-374-7246

Maria Carney, MD, Geriatrician, Chief of Geriatrics at Northwell’s Geriatric Medical Group,Great Neck, 516-708-2520

Marc Gordon, MD, Neurologist,Great Neck, Northwell (formerly North Shore/LIJ): 516-325-7000

Itzhak Hamovic, MD, Neurologist,Great Neck, Neurological Specialties of L.I., 516-487-4464

Adena Leder, MD, Neurologist,Great Neck, Neurological Specialties of L.I., 516-487-4464

James Lolis, MD, Geriatrician, Northwell’s Geriatric Medical Group, Great Neck, 516-708-2520

Barry Menna, MD, Neurologist,Plainview, associated with Northwell: 516-822-2230

Martin Niethammer, MD, Neurologist, Northwell, Great Neck: 516-325-7000

Bernard Savella, MD, Neurologist,Mineola, Winthrop Hospital, 516-294-9750

Dr. Santo Terranova, MD, Neurologist,Great Neck, Northwell: (516) 562-4300

Dr. Birendra Trivedi, MD,Neurologist,Massapequa, (516) 520-5507

Gisele Wolf Klein, MD, Geriatrician, Northwell’s Geriatric Medical Group,Great Neck, (516) 708-2520

SUFFOLK COUNTY

David Kreitzman, MD, Neurologist,Commack, 631-462-7774

Nancy McLinskey, MD, Neurologist,Stony Brook, Stony Brook Medical Center, 631-444-2599

Alan Steinberg, MD, Geriatric Neuropsychiatrist,Centereach – East End Neuropsychiatric, 631-737-6434

WilliamTaibi, MD, Internist,Port Jefferson, 631-474-4000

(Video) Understanding Lewy Body Dementia

Jacques Winter, MD, Neurologist, 755 New York Avenue, Huntington, 631-351-1250

BROOKLYN

Emil Baccash, MD, Geriatrician, New York Methodist Hospital: 718-622-7000

Jose Cabassa, MD, Neurologist, SUNY Downstate, 718-270-2502

Howard A. Crystal, MD, Neurologist, SUNY Downstate, 718-270-2748

Moath Hamed, MD, Neurologist, NY-Presbyterian Medical Group: 718-246-8614 or 646-967-2020

Barbara Paris, MD, Geriatrician, Maimonides Hospital, 718-283-7071

Miran Salgado, MD, Neurologist, Chairman of Neurosciences, NY-Presbyterian Methodist Hospital: 718-246-8614

Daryl Victor, MD, Neurologist, NY-Presbyterian Methodist Hospital: 718-246-8614

THE BRONX

Wanda Horn, MD, Geriatrician, Montefiore Medical Center: 866-633-8255

Jessica Zwerling, MD, Neurologist, Montefiore Einstein Center for the Aging Brain, Yonkers: 914-375-4880,http://www.montefiore.org/aging-brain (They have a Bronx office as well. Please call for additional information.

QUEENS

STATEN ISLAND

Viola Ortiz, MD, Internist with geriatric practice, 3589 Hylan Blvd, 718-966-3700

WESTCHESTER COUNTY

Ashock Chopra MD, Internist, Mt Sinai/Riverside Hospital, No Bwy in Yonkers: 914-968-3535

Pasquale Franzetti, MD, Neurologist, Burke Rehabilitation, White Plains: 914-597-2500

Barry Jordan, MD, MPH, Neurologist, Burke Rehabilitation, White Plains: 914-597-2500

Lindsey Neimand, MD, Neurologist, 90 S. Bedford Rd, Mt. Kisco: 914-241-1050

Ronald Silverman, MD, Neurologist, Lawrence/Columbia Presbyterian, Bronxville: 914-337-2022

Joe Verghese, MD, Neurologist,Montefiore Einstein Center for the Aging Brain, Yonkers: 914-375-4880, http://www.montefiore.org/aging-brain

Jessica Zwerling, MD, Neurologist, Montefiore Einstein Center for the Aging Brain, Yonkers: 914-375-4880,http://www.montefiore.org/aging-brain– The Center for the Aging Brain is a collaborative between Montefiore and Albert Einstein College of Medicine and provides personalized and comprehensive treatment for a range of conditions facing older adults. Theirmultidisciplinary approach brings together the expertise of world-class doctors to provide comprehensive care for illnesses and quality-of-life issues associated with aging.

CONNECTICUT

Dr. Leon Meytin, Movement Disorder Neurologist – Hartford HealthCare – 623 Newfield Avenue, STAMFORD, CT – 860-870-6385

Dr. Paul Greene, Neurologist – Yale School of Medicine – 800 Howard Avenue, NEW HAVEN, CT – 203-785-2140

(Video) Dr. Daniel I. Kaufer Lecture series: Diagnosis and Management of Dementia with Lewy Bodies

ROCKLAND COUNTY

Dr. Dennis Lyle – Good Samaritan Hospital: 845-368-8808

ORANGE COUNTY

Dr. Zewditu Bekele-Arcuri – Newburgh and Middletown: 845-6156999

MONROE COUNTY

ROCHESTER

UNIVERSITY OF ROCHESTER MEDICAL CENTER

The University of Rochester Research Center of Excellence is part of the Department of Neurology’s Movement Disorders Division which is committed to conducting high quality research, delivering patient and family centered care, support and education to those affected by movement disorders, including Parkinson’s disease and related parkinsonian conditions. The movement disorders clinical and research centers are integrated and currently include six movement disorder neurologists, one neuropsychologist, 3 movement disorders fellows, 2 nurse practitioners, 2 RN’s, one social worker and 5 research coordinators. The movement disorders division faculty and staff collaborate closely with those in our Memory Care Program as well as the Centers for Human Experimental Therapeutics and Telemedicine. The comprehensive approach to patient care in both the movement disorders and memory care programs includes access to formal neuropsychological assessment, cognitive rehabilitation and speech therapy in our Integrated Cognitive Rehabilitation Program in the Department of Physical Medicine and Rehabilitation, psychological and psychiatric care through our Older Adults Service in the Department of Psychiatry, Physical and Occupation Therapy, and case-management and counseling with social workers.

Phone number:585-341-7500 – Irene Richard, MD –Website:Movement Disorders Division

PODIATRISTS– who make house calls

Medicare will pay for in home foot care every 9 weeks.

Manhattan:

Roselyn M. Wroblewski, Feet First Podiatry –141 W. 73rd St.

917-301-8996 or212-724-2622

Long Island: Dr. Amanda Romero: c: 516-220-6842, o: 631-864-7380

Brooklyn: Doctor Tartak – His associate Adam makes home visits: 718-769-7801

Westchester:

Dr. Sherry Random: 914-668-5296
Dr. Ronald J Rimali: 914-793-8114

The information on this website and on our Helpline is provided as a resource for LBD caregivers in the New York area, but it is not intended as an endorsement of any one product or provider, medication or medical procedure, and is not meant as a substitute for any medical or other professional advice.

Please note: Information provided on this site might change so please call the specific contact for current information.

FAQs

What is the average lifespan of someone with Lewy body dementia? ›

The life expectancy of individuals with dementia with Lewy bodies varies; people typically survive about 5 to 7 years after they are diagnosed. REM sleep behavior disorder may be the first sign of dementia with Lewy bodies. It can occur years before other symptoms appear.

What medications should be avoided with Lewy body dementia? ›

Patients who have dementia with Lewy bodies should not be given the older, typical D2-antagonist antipsychotic agents such as haloperidol (Haldol), fluphenazine (Prolixin), and chlorpromazine (Thorazine). Patient records should document this and caregivers should be informed.

What is the best medication for Lewy body dementia? ›

Medications. Cholinesterase inhibitors. These Alzheimer's disease medications, such as rivastigmine (Exelon), donepezil (Aricept) and galantamine (Razadyne), work by increasing the levels of chemical messengers in the brain (neurotransmitters) believed to be important for memory, thought and judgment.

Is Lewy body dementia considered terminal? ›

Dementia caregivers describe knowing what to expect as an unmet need and many are unaware that dementia can be a terminal condition. Dementia with Lewy bodies (DLB) is a common neurodegenerative dementia with unique features which may affect the end of life (EOL).

What causes death with Lewy body dementia? ›

If including those respondents who indicated DLB or Lewy body dementia as the only cause of death, the frequency of death related to dementia or failure to thrive reached 70%. Complications from pneumonia or trouble swallowing was the second most common cause of death.

Is Lewy body dementia always fatal? ›

Is Lewy body dementia fatal? A. Despite the benefits offered by available treatments, there is deterioration in cognitive and motor function over time. Like Alzheimer's disease, Lewy body dementia is a progressive disease with average survival after diagnosis of about eight years.

Can CBD oil help Lewy body dementia? ›

Dementia with Lewy bodies results in a decline in thinking, reasoning and independent function. Fortunately, CBD can be helpful. According to Dementia Care Central, “CBD can be an effective anti-inflammatory agent, reduce motor symptoms (tremor, rigidity, bradykinesia) and maintain circadian (sleep) rhythms”.

How do you calm someone with Lewy body dementia? ›

10 non-drug ways to manage Lewy body dementia symptoms
  1. Tolerate behavior that doesn't cause harm, focus on reassurance and distraction. ...
  2. Check for physical causes. ...
  3. Check for medication side effects. ...
  4. Modify their environment. ...
  5. Use kind, soothing responses to comfort and calm. ...
  6. Create daily routines and keep tasks simple.

Can Lewy body dementia go into remission? ›

Remission to near-normal cognitive function can occur spontaneously in the absence of clear environmental triggers suggesting that fluctuating cognition in Lewy body dementia is internally driven and that dynamic changes in brain activity play a role in its aetiology (Ballard et al., 2001; Sourty et al., 2016).

Can you reverse Lewy body dementia? ›

Treating movement symptoms in Lewy body dementia

LBD-related movement symptoms may be treated with medications used for Parkinson's disease, called carbidopa-levodopa. These drugs can help make it easier to walk, get out of bed, and move around. However, they cannot stop or reverse the disease itself.

How fast does Lewy body dementia progress? ›

Lewy body dementia usually takes five to eight years to progress from diagnosis to death. Some cases may progress faster, while others may progress much more slowly. Regardless of the speed of progression, the timeline of Lewy body dementia is usually distinguished by early, middle, and late stages.

Does Lewy body show on MRI? ›

HealthDay News — Magnetic resonance imaging (MRI) of the brain may aid diagnosis of dementia with Lewy bodies versus Alzheimer's disease, according to a study published online Nov. 2 in Neurology.

What are the signs of end stage Lewy body dementia? ›

Lewy body dementia signs and symptoms can include:
  • Visual hallucinations. ...
  • Movement disorders. ...
  • Poor regulation of body functions (autonomic nervous system). ...
  • Cognitive problems. ...
  • Sleep difficulties. ...
  • Fluctuating attention. ...
  • Depression. ...
  • Apathy.
Jun 8, 2021

How fast does Lewy body dementia progress? ›

Lewy body dementia usually takes five to eight years to progress from diagnosis to death. Some cases may progress faster, while others may progress much more slowly. Regardless of the speed of progression, the timeline of Lewy body dementia is usually distinguished by early, middle, and late stages.

What are the 7 stages of Lewy body dementia? ›

WHAT ARE THE 7 STAGES OF DEMENTIA?
  • Stage One: No Cognitive Decline. ...
  • Stage Two: Very Mild Cognitive Decline. ...
  • Stage Three: Mild Cognitive Decline. ...
  • Stage Four: Moderate Cognitive Decline. ...
  • Stage Five: Moderately Severe Cognitive Decline. ...
  • Stage Six: Severe Cognitive Decline. ...
  • Stage Seven: Very Severe Cognitive Decline.
Feb 19, 2019

Does Lewy body dementia progress faster than Alzheimers? ›

Unlike Alzheimer's disease, which tends to progress gradually, this disease often starts rapidly, with a fast decline in the first few months. Later, there may be some leveling off but Lewy body dementia typically progresses faster than Alzheimer's. A patient can survive from five to seven years with the disease.

Videos

1. Treating Dementia with Lewy Bodies: Beyond Medications
(Michigan Medicine)
2. Living with Lewy Body Dementia - Mayo Clinic
(Mayo Clinic)
3. What makes the Lewy Body Dementia Resource Center unique?
(Norma Loeb)
4. Treatment and Research: Dementia with Lewy Bodies (DLB)
(CurePSP)
5. Family grateful for Lewy body dementia treatment | Ohio State Medical Center
(Ohio State Wexner Medical Center)
6. Lewy Body Dementia information by expert neurologist Dr. James Galvin
(Norma Loeb)

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